My son, E, has FPIES. In February 2014, when I finally got the courage (and time) to start this blog, he was 17 months old. We have been living with food allergies his whole life (though it was several months before we had a name for it). I’m a doctoral candidate and my coping mechanism is research. When I get stressed, I read. This has provided me with a lot of knowledge about food allergies and FPIES. I work every day to overcome this illness and create a safe world that is as normal as possible for my son. I created this blog to provide information on this rare and frustrating illness. It is also a place to share our story, to help other parents faced with this diagnosis to feel not so alone. I have had days where I felt incredibly overwhelmed and didn’t think that I’d ever get a handle on it. I am certainly no expert, but I am surviving as a parent with an FPIES child. And E is thriving. He is a happy, chubby, rambunctious, and sweet little boy who has no idea that there are any limitations on his life.
Like many families, our FPIES journey has been complicated. Allergens seem to come and go for us. I share my recipes on the blog, but please be aware that our safe ingredients are somewhat inconsistent – but I am sure you are very aware of the ingredients in everything 🙂